Category Archives: healthcare

Living on the edge with Farzad

  • It’s not as simple as you give people information and they change their behavior.  It’s information tools that build on that data and build on communities and a much more sophisticated understanding about how behavior changes. What TEDMED is also great at, is understanding the power of marketing. People think of marketing of being about advertising, but marketing is the best knowledge we have about how to change behavior and all those intangibles, those predictably irrational insights, of how and why we do what we do.
  • It’s harnessing those, instead of having them lead to worse health – like present value discounting that leads to people wanting to procrastinate and eat that doughnut now instead of going to the gym. Or the power of anchoring, where we fixate on the first thing we see and won’t think objectively about the true risks of things. Or the herd effect, our friend is overweight and so we are more likely to be overweight.
  • All those nudges that are possible can be delivered to us ubiquitously and continuously, and we can choose to have them. It’s not some big brother dystopic vision. It’s me saying, ‘I want to be healthier, so I will do something now that will help me overcome and use my irrationality to help me stay healthy.  To me, that’s the neat new edge between mobile cloud computing, personal healthcare, behavioral economics, healthcare IT, data science and visualization, design, and marketing. It’s that sphere that has so many possibilities to get us to better health.

http://blog.tedmed.com/?p=4153

 

The exit interview: Farzad Mostashari on imagination, building healthcare bridges and his biggest “aha” moments

Posted on  by Stacy Lu

Farzad Mostashari, MD, stepped down from his post as the National Coordinator for Health Information Technology at the U.S. Department of Health and Human Services (HHS), during the first week of October, which was also the first week of the Federal partial shutdown. During his tenure, Dr. Mostashari, who spoke at TEDMED 2011 with Aneesh Chopra, led the creation and definition of meaningful use incentives and tenaciously challenged health care leaders and patients to leverage data in ways to encourage partnerships with patients within the clinical health care team.

Whitney Zatzkin and Stacy Lu had the opportunity to speak with Dr. Mostashari during his last week in office.

WZ: Sometimes, a person will experience an “aha!” moment – a snapshot or event that reveals a new opportunity and challenges him/her to pursue something nontraditional. Was there a critical turning point when you figured out, ‘I’m the guy who should be doing this?’

Yeah, I’ve been fortunate to have a couple of those ‘aha’ moments in my life. One of them was when I was an epidemic intelligence service officer back in 1998, working for the CDC in New York City. I’ve always been interested in edge issues, border issues; things that are on the boundaries between different fields. I was there in public health, but I was interested in what was happening in the rest of the world around electronic transactions and using data in a more agile way.

In disease surveillance we often look back — the way we do claims data now – years later or months later you get the reports and you look for the outbreak, and often times the outbreak’s already come and gone by the time you pick it up. But I started thinking and imagining: What if the second something happens, you can start monitoring it? In New York City the fire department was monitoring ambulance calls. I said, ‘Wow, if we could just categorize those by the type of call, maybe we’ll see some sort of signal in the noise there.’

When I was first able to visualize the trends in the proportion of ambulance dispatches in NYC that were due to respiratory distress, what I saw was flu.  What jumped out at me was the sinusoidal curve. Wham! At different times of year, it could be a stutter process – it would go up and you would see this huge increase, followed two weeks later by an increase in deaths. It was like the sky opening up. The evidence was there all along, but I am the first human being on earth to see this. That was validation, for me, of the idea that electronic data opens up worlds. To bring that data to life, to be able to extract meaning from those zeros and ones — that’s life and death. That was my first ‘aha’ moment.

The second aha was after I joined New York City Department of Health, and I started a data shop to build our policy around smoking and tracking chronic diseases. What we realized was that healthcare was leaving lives on the table. There were a lot of lives we could save by doing basic stuff a third-year medical student should do, but we’re not doing it.  Related to that – Tom Frieden had a great TEDMED talk about everybody counts.

I said, ‘I want to take six months off and do a sabbatical, and see if there’s anything to using electronic health records to provide those insights, not to save lives by city level, but on the 10 to the 3 level – the 1,000 patient practice. That started the whole journey.  None of the vendors at the time had the vision we had, but we finally got someone to work with us and rolled this system out.  We called some doctors some 23 times, and did all the work to get to the starting line.  Finally, I took Tom on a field visit to see one of the first docs to get the program.

It was a very normal storefront in Harlem, and a nice physician, very caring, very typical.  I asked her what she thought of the program. She said, ‘It’s ok. I’m still getting used to it.’  I said, ‘Did you ever look at the registry tab on the right, where you can make a list of your patients? She said no.  I said, ok – how many of your elderly patients did you vaccinate for flu this year? She said, ‘I don’t know, about 80 to 85 percent.  I’m pretty good at that.’  I said, ‘o.k., let’s run a query.’  And it was actually something like 22 percent. And she said – this was the aha moment – ‘That’s not right.’

That’s generally the feeling the docs have when they get a quality measure report from the health plan. But that’s population health management — the ability to see for the first time ever that everybody counts. And being able to then think about decision support and care protocols to reduce your defect rate. That was the validation that we’re on to something. Without the tools to do this, all the payment changes in the world can’t make healthcare accountable for cost and quality if you can’t see it.

WZ: Everyone has that moment in life when they’re considering all of their career options. As you were considering medical school, what else was on the table?

I actually didn’t think I was going to go to medical school. I was at the Harvard School of Public Health. I was interested in making an impact in public health. I grew up in Iran, and thought I would do international public health work. And then my dad got sick; he had a cardiac issue. The contrast between the immediacy of the laying on of hands of healthcare, and the somewhat abstractness of international public health — the distance, the remove — tipped me into saying,  ‘You know, maybe I should go to medical school.’  I’ve been on that edge between healthcare and public health ever since, and always trying to drag the two closer to each other.

SL: Fast forward 20 years.  You’re giving another talk at TEDMED.  What’s the topic?

TEDMED and Jay Walker’s vision is more powerful in the futurescope, rather than in the retroscope. It’s more powerful to be where we are today and imagine a different future rather than look back and say, ‘Oh, yeah, we’ve done this.’  So what’s the future I would love to imagine?

The most exciting thing – as Jay Walker once mentioned in a talk comparing “medspeed” to “techspeed” – is to fully imagine what will happen if techspeed is brought to healthcare. Right now, there’s all this unrealized value that’s being given away for free that doesn’t show up on any GDP lists – what Tim O’Reilly called “the clothesline paradox.”  That kind of possibility brought to medicine, but where software costs $100,000 as opposed to free, and it evolves daily and is more powerful and quicker every day, and it’s beautiful and usable and intuitive, and that’s what people compete on.

And all of that is toward the goal of empowering people.  Someone said, maybe it was Jay at TEDMED, that a 14-year-old kid in Africa with a smart phone has more access to information than Bill Clinton did as President. Information is power, and it has changed everything but healthcare. For me the vision is breaking down that wall, so that patients can be empowered and can bind themselves to the mast to use what we’ve learned about how behavior changes.

It’s not as simple as you give people information and they change their behavior.  It’s information tools that build on that data and build on communities and a much more sophisticated understanding about how behavior changes. What TEDMED is also great at, is understanding the power of marketing. People think of marketing of being about advertising, but marketing is the best knowledge we have about how to change behavior and all those intangibles, those predictably irrational insights, of how and why we do what we do.

It’s harnessing those, instead of having them lead to worse health – like present value discounting that leads to people wanting to procrastinate and eat that doughnut now instead of going to the gym. Or the power of anchoring, where we fixate on the first thing we see and won’t think objectively about the true risks of things. Or the herd effect, our friend is overweight and so we are more likely to be overweight.

All those nudges that are possible can be delivered to us ubiquitously and continuously, and we can choose to have them. It’s not some big brother dystopic vision. It’s me saying, ‘I want to be healthier, so I will do something now that will help me overcome and use my irrationality to help me stay healthy.  To me, that’s the neat new edge between mobile cloud computing, personal healthcare, behavioral economics, healthcare IT, data science and visualization, design, and marketing. It’s that sphere that has so many possibilities to get us to better health.

The thing about the health is, we have a Persian saying: Health is a crown on the head of the healthy that only the sick can see. When you have it, you don’t appreciate it, but when you’re sick and someone you love is sick, there’s nothing better.  You would do anything to get that. We need to bring that vision of the crown to everyone and help each of us grab it when we can.

WZ: I noticed you closing your eyes while preparing to answer a question. How do you pursue being able to exercise your imagination, in particular while you’re sitting in a building that’s been marked for being the least imaginative?

Because the world, as it is, is too immediate and real and limiting, sometimes you have to close your eyes to see a different world.

What has been amazing has been to see that, contrary to what people expect, this building is filled with people with untapped, unbound, unfettered imaginations who are slogging through. They’re just trapped. You give them the opening, the smallest bit of daylight to exercise that, and they’re off and running.

I give a lot of credit to Todd Park as our “innovation fellow zero,” He saw the possibility that there are more than two kinds of people in the world, innovators and everybody else. For him, it was about going to create a space where outside innovators can be the catalyst or spark that elevates and permissions the innovation of the career civil servant at CMS in Baltimore. That’s been cool.

SL: What’s your bowtie going to do after you leave HHS?  Will we see it lounging on the beach in Boca?

I like the bowtie.  I think I’m going to keep it.  Perhaps the @FarzadsBowtie Twitter handle is going to go into hibernation, I don’t know.  I don’t control it. One of the things the bowtie does for me is help me remember not to get too comfortable.

I once said at the Consumer Health IT Summit – ‘You’re a bunch of misfits – glorious misfits. And I feel like I’m very well suited to be your leader. You know, I always felt American in Iran, and felt Iranian in America when I came here. I felt like a jock among my geeky friends, and like a geek among jocks. For crying out loud, I wear a bowtie!  I don’t have to tell you I’m a misfit.’

It’s that sense of not fitting into the world as it is. The world doesn’t fit me.  So instead of saying,  ‘I need to change,’ this group of people said, ‘The world needs to change.’ That’s the difference between a misfit and a glorious misfit.

The person who doesn’t fit into our healthcare system is the patient. The patient’s preferences don’t fit into the need to maximize revenue and do more procedures. The patient’s family doesn’t fit into the, ‘I want to do an eight-minute visit and get you out the door’ agenda. The patient asking questions doesn’t fit.  That’s the change we need to make. It’s not that we need to change. Healthcare needs to change to fit the patient.

Shortly following this interview, Dr. Mostashari left HHS and is now the a visiting fellow of the Engelberg Center for Health Care Reform at the Brookings Institution, where he aims to help clinicians improve care and patient health through health IT, focusing on small practices.

This interview was edited for length and readability.

Gamification in health…

  • people are more open to learning from a game than a powerpoint or clinician
  • fun, competition, and social networks all have positive affects on health and fitness behavior
  • “Practitioners still haven’t internalized the idea that we need to help people do the right thing. Not just by giving them the opportunity, but making them want to do it.”
  • “Designing engagement into social games is largely about manipulating dopamine response. Gamifying health allows us to hack into our natural feedback loops by engineering ways for us to get more dopamine for demonstrating good behavior.”

 

Source: http://www.medcrunch.net/whats-fun/ (via RWJF)

Gaming for Patient Treatment – What’s Fun Got to Do With It?

by  on Nov 6, 2013 • 8:48 pm

“People rarely succeed unless they have fun in what they are doing.” -Dale Carnegie

The Theory of Fun is an organization devoted to social experiments in fun. In one experiment, they turned a staircase next to an escalator into a piano to see whether people would still opt for the less physically challenging escalator. Not only did people choose for the fun piano staircase; they also went up and down the stairs multiple times (see the results here.) Playfulness has increasingly become incorporated into patient engagement and adherence. Additionally, creative tactics like video games that use fun, competition, and your social networks have shown positive affects on health and fitness behavior.

RM2 Customer 1 Gaming for Patient Treatment   What’s Fun Got to Do With It?Paul Tarini, team leader for the Robert Wood Johnson Foundation’s Pioneer Portfolio, reported in 2010 that the collision of games and healthcare was inevitable. Featured that year at the Games for Health conference in Boston, MA, were dancing games for patients with Parkinson’s disease, or alternatives-to-smoking games on iPhones. Since, we’ve seen an unveiling of companies that develop games benefitting all sorts of conditions from anxiety and depression (SinaSprite byLitesprite) to games for kids with cancer (Re-Mission2 by Hopelab). The results have been significant and have illustrated how patients feel more inclined to accept and learn from a game about their condition than from, say, a PowerPoint or clinician. In Re-Mission2, results showed how players adhered to their treatment longer and more consistently after interacting with the game. Even more impressive, players had higher levels of chemotherapy in their body and so were literally responding to treatment better.

Michael Fergusson, founder and CEO of Ayogo Games, a social gaming production company based in Vancouver, believes games are the key to patient engagement and adherence. Practitioners, Fergusson says, “ still haven’t internalized the idea that we need to help people do the right thing. Not just by giving them the opportunity, but making them want to do it.”

Prescribed Fun: The Trick (or Science) of Adherence and Engagement

The World Health Organization (click for report) has said that people around the world will benefit more from adherence than from new therapy. Esther Dyson, an active investor in the digital health movement, has said, “It’s colossal stupidity that people aren’t healthier, because we know how to do it.” Yet, we don’t. Our own inability to do what we know we need to is the cause of many health care problems.

Perhaps social games can help. Social games are digital games played with your online social communities (like Facebook and Twitter). According to Ayogo Games: “Designing engagement into social games is largely about manipulating dopamine response. Gamifying health allows us to hack into our natural feedback loops by engineering ways for us to get more dopamine for demonstrating good behavior.”

A recent NPR article, “How Video Games Are Getting Inside Your Head – And Your Wallet”discusses how video game architects actively track children’s engagement with the game they’re playing. Inherent in any game design is research, tests, and analysis, all of which are imperative to making the game more fun, more engaging, and more likely to hold the player’s attention longer, and in some cases long enough to buy something.

The science of the brain and human behavior are integral to the success of a game. Many, especially parents trying desperately to get their kids outdoors, interacting with “real” things and “real” people, have more damning language about these studies than applauding. Indeed, most, when attributing the term “brain manipulation” to something, don’t have many nice things to say. Yet, looking at all this through a health care lens, if doing the same types of testing, tweaking and manipulation leads to positive and permanent change in health and fitness of an individual, it can’t be that bad, right?

Michael Fergusson believes this, and has created successful games where players’ health and behavior improve because of it.  One of Ayogo’s first health care games, Healthseeker, was for people living with diabetes, and the first health care game on Facebook. They had over 15,000 players. There were parts that were extremely successful, but other elements that weren’t. They reviewed the data and looked at what worked and what didn’t to see what design elements of the game brought players success in their health goals. What they found was players who consistently received incoming messages of encouragement from their online social networks had significantly greater chances of success. Putting friends and family into their application, Ayogo discovered, makes the game more meaningful. As a result, this design element has been brought forward into other game designs.

Team Fun 

“Man is most nearly himself when he achieves the seriousness of a child at play.” -Heraclitus

Outside of the digital space, Little Bit Therapeutic Riding Center provides equine facilitated therapy to children and adults with neurological, pyshological, and physiological disabilities. For the riders, working with horses provides an overwhelming sense of joy, and the therapy no longer becomes treatment-like. Instead, it’s fun and unpredictable. More, a rider’s experience of success is linked to the team supporting her efforts – her volunteers, her horse, and her instructor. Play, joy, laughter, excitement – they all have healing powers for our minds, bodies, and spirits – and the value of your community in sustaining all that cannot be underestimated, whatever the method.

“The experience of interacting with your own health can be dramatically affected,” says Fergusson. Because of this you want the design of the experience to engage as many people as possible so that embedded in the design, is an evolving conversation where people can learn together and improve the quality of life together. To this, Fergusson asks an interesting question: “There’s a question about who’s behavior you’re really trying to affect in social gaming – is it the person’s behavior or the community of that person?” Perhaps it’s both that need to change in order for engagement and adherence to really stick.

Healthy life years is the key selling proposition for funding NCD interventions…

Non-communicable disease presents an as-yet, unresolved health research challenge. But they may also lie at the heart of a similarly unresolved intergenerational, macroeconomic challenge.

To date, governments and academics around the world have sat back and carefully observed the epidemic of overweight, obesity, metabolic syndrome and diabetes overtake their communities.

The food industry has aggressively defended its turf, understandably resisting any calls for regulation in the absence of definitive evidence that these interventions will work.

Only the most courageous of politicians would ever embark on the regulation of such a powerful sector in the absence of evidence supporting efforts such as restricting advertising to children, mandating processed food composition, food labeling and taxing macronutrients know to be harmful.

So we find ourselves at an impasse that no one seems particularly able to break.

An emerging theme related to this issue is the idea that while the health system has succeeded in delivering extended life, it has not yet extended healthy life years. As such, the population still shudders at the thought of raising the retirement age past 70, even though average life expectancy now surpasses 80.

Non-communicable disease is considered a major driver of this divergence. As such, preventing non-communicable disease may represent an important challenge, not only driven by a health/moral imperative, but also for important economic reasons.

There are significant macroeconomic consequences of people not living most of their lives in a productive state of health. Most significant of these is the capacity of societies to sustain pensions when boomer-driven demographic shifts result in an increasing ratio of pensioners to tax payers.

This places life insurers, governments and superannuation funds into the medium- to long-term frame as key beneficiaries of addressing non-communicable disease.

This in turn makes them key targets for attracting investment capital to a venture addressing this concern.

Imagine a world where people lived healthy, vital, productive lives well into the 70s.

Too much?

Google have spotted this opportunity by investing $100Ms in a new start up called the California Life Company (CaLiCo). Its initial focus is on “ageing” with an early emphasis on genomics, epigenetics and a pharmaceutical fix.

I starting to think the answer is much simpler: Eat food, not too much, mainly plants. Move.

It’s about less, not more.

Establishing the evidence for this inkling, and then commercialising the insights gained is the inspiration behind Riot Health.

Stand by.

Building a bridge to the future with population health analytics…

  • Leading US providers are using analytics to bring a more intense focus on gaps in care, to discover cost outliers, and to put a magnifying glass on efficiency
  • “Unlike other industries that may be high users of data and very sophisticated, the healthcare industry is at a different point”
  • “A platform where we mesh both claims data and data out of our electronic health records allows a lot more to be learned. The type of intelligence that we can glean is at a much more informed level than if we’re just dealing with one of those data sets in isolation.”
  • At the heart of population health analytics is the concept of risk stratification: understanding, through various inputs such as claims data, surveys, and EHRs, which members of a given healthcare organization’s customer base represent a level of risk for which intervention offers the greatest possibility of preventing future hospital admissions, reducing readmissions, improving overall health, and lowering costs.
  • Cleveland Clinic’s Explorys pulls data from a variety of sources—multiple electronic health records, billing systems, claims data from CMS and other payers—and assimilates that all together to allow filtering, reporting, identify care gaps and registry functions
  • A variety of tools exist to help stratify risk:

> Some tools place members of a population on a scatter plot to make the identification of outliers easier
> Other tools organize a population into patient registries to track various diseases and treatments
> Still other tools use input gathered from patient surveys.

  • near-real time data is an important addition

 

http://www.healthleadersmedia.com/content/TEC-298525/How-Population-Health-Analytics-Opens-Opportunities-for-Better-Care

How Population Health Analytics Opens Opportunities for Better Care

Scott Mace, for HealthLeaders Media , November 20, 2013

Innovators are blending technology with new care models while targeting high-risk patients in a patient-centered strategy.

This article appears in the November issue of HealthLeaders magazine.

Without robust analytics technology, the goals of accountable care and population health cannot fully be achieved, good intentions notwithstanding. ACOs must correlate clinical data and claims data and use analytics technology to produce the actions needed to manage the health of a population. The data is there, but the healthcare industry does not have an evenly distributed knowledge of how to use it effectively.

With potential savings of up to $300 billion a year, according to the consulting firm McKinsey & Company, the upside of industrywide analytics to manage a population is considerable.

And, increasingly, providers have the raw data they need to feed an analytics system. But it is not as simple or quick as installing electronic health record technology—no small feat in itself for many organizations—and must be accompanied by solid governance and education, according to leading providers.

These providers are using analytics to bring a more intense focus on gaps in care, to discover cost outliers, and to put a magnifying glass on efficiency. But the use of such healthcare analytics has yet to reach maturity.

Early in the process

“Our organization is facing what most of the industry is facing, and that is the need to build a bridge to the future through analytics; so unlike some other industries that may be high users of data and very sophisticated, the healthcare industry is just in a different point,” says Aric Sharp, vice president of the accountable care organization at UnityPoint Health, a West Des Moines, Iowa–based integrated health system with 3,026 licensed beds across 15 hospitals and total operating revenue of $2.7 billion.

“We’re still in the process, as an industry, of going through implementing electronic health records and achieving meaningful use and those types of things. At the same time, with a lot of the new efforts around accountable care organizations, for one of the first times many providers have an opportunity to collect claims data by working with payers,” Sharp says. “We felt it necessary to build a platform where we can mesh together both claims data and data out of our electronic health records, because there’s a lot more that’s able to be learned in that type of an environment. The type of intelligence that we can glean is at a much more informed level than if we’re just dealing with one of those data sets in isolation.”

UnityPoint Health typifies numerous providers, having initiated analytics for its population health initiative only a couple of years ago. “The primary lesson is, this is really difficult, and there’s a lot to learn along the way,” Sharp says. “And yet, we can certainly see that as we continue to enhance the work, there’s more and more benefit with every step. The big learning is that there’s just a lot to be learned, and it’s exciting, because with every step of the process, we are better able to identify opportunities to improve care, and we’re able to become more efficient at this type of work.”

At the heart of population health analytics is the concept of risk stratification: understanding, through various inputs such as claims data, surveys, and EHRs, which members of a given healthcare organization’s customer base represent a level of risk for which intervention offers the greatest possibility of preventing future hospital admissions, reducing readmissions, improving overall health, and lowering costs.

UnityPoint Health selected analytics technology from Explorys, a data spinoff of Cleveland Clinic founded in 2009.

“Explorys is able to pull data from a variety of sources—multiple electronic health records, our own billing systems, claims data from CMS or other payers—and assimilate that all together,” Sharp says. “Explorys is really what sits on top of that and gives us an ability to slice and dice and analyze it and probe it and report quality metrics, identify gaps in care, and in the future even use that to do outreach to patients and do registry-type functions.”

UnityPoint Health still counts the time until the big payoff in years. “We’re not yet ready to say that it has an impact on our global per-member per-month spent,” says Vice President of Operations Kathleen Cunningham. “It will, but we are so early in our innovation that some of our results are really based on the pilot type of innovation programs that we’re working on.”

Starting with employee populations

In many healthcare systems, population health analytics success stories are just beginning to emerge, but some providers have used their own employee populations as a proof of concept for the effectiveness of the effort.

For the past 11 years, employees of Adventist HealthCare—a nonprofit network based in Gaithersburg, Md., with three acute care and three specialty hospitals, 6,263 employees, and 2012 revenue of $726 million—have been managed for risk by the self-insured provider.

“It got started with the idea that a healthier population is going to be a more effective employee population, and it’s going to also be a lower-cost population,” says Bill Robertson, president and CEO of Adventist HealthCare.

 

A decade ago, Adventist started working with InforMed Healthcare Solutions, since acquired by Conifer Health Solutions, to use InforMed’s set of data warehouse tools to improve its health plan design and determine where interventions were needed, Robertson says. Adventist and InforMed worked collaboratively to develop those tools and restructure the Adventist workflow to ramp up the effectiveness of the population health program.

As a result of population analytics, as well as other measures such as discouraging tobacco use and encouraging use of generic drugs, the inflation rate of Adventist’s employee health plan cost over the past nine years was half the national average, Robertson says.

A key development in the population health initiative came in 2005, when Adventist created personal health nurses as part of a pilot patient-centered medical home to work with the approximately 360 high-risk members of Adventist’s 6,600 employee-based covered lives identified by the InforMed data tools, Robertson says.

In a pilot, Adventist selected 27 of 50 high-risk patients (54%) and was able to move them out of the high-risk pool into moderate or low-risk pools, and it achieved a 35% reduction in the cost of care for that population, he says.

According to Adventist, the pilot project that achieved the 35% reduction did reduce health plan costs by $381,000 among the 27 patients who moved from the high-risk pool. The amount expended to achieve this 35% reduction was only $31,000, so every dollar spent returned approximately $12 in savings.

“It was actually so dramatic that it brought the inflation rate on our health plan to zero in that year,” Robertson says. “We were pretty pleased with that.” Overall, Adventist has saved “tens of millions of dollars” due to employee population health analytics to reshape the program and services for employees, he says.

Adventist then expanded this pilot PCMH to 5% of its employees (roughly 360 people), and continues to see the same kind of positive outcomes, Robertson says. Nurses make up the majority of InforMed users.

Three years ago, Adventist created ACES, which stands for Ambulatory Care EHR Support, an initiative to move its ambulatory physicians to use electronic medical records to expand its capacity to do population-focused care. By the end of 2013, more than 400 physicians will be using the ACES system. “So much of the job is how you integrate care across physicians and across the delivery system,” Robertson says. “When you have one person who’s seeing 15 physicians, but each physician thinks they’re the only one, you end up with different challenges than when you can see everything.”

All physicians who are participating providers in the Adventist HealthCare employee health benefit plan have access to the InforMed tools and analytics. Only a limited number directly access the information because the personal health nurses provide most of the ongoing care management, with the physicians serving more as the team captains, Robertson says.

The next step for Adventist IT is to tie analytics with the employee EHR. “What we’re morphing toward is linking all of this together with HIE infrastructure so that the information that is in the InforMed platform will be available in your EHR platform and vice versa through the information exchange,” Robertson says.

Adventist also created financial incentives that help its physicians spend “all the time it takes” to manage high-risk patients, Robertson says. “With an ACO, you don’t really get paid an incentive until you’ve been successful—at least after the first year you’ve demonstrated that things are working and that they’re [generating] shared savings,” he says. “So we’re still in the process of sorting out how we’ll make sure this infrastructure is utilized actively.”

Detailing the financial incentives, Robertson says the primary care physicians who participate in the patient-centered medical homes receive additional compensation, such as a monthly retainer or hourly incentive to compensate them for the additional time that is necessary to care for the high-risk patients in the PCMH.

Recent headlines have highlighted some fallout from the Pioneer ACO program. Fifteen charter members dropped out of the program after finding inadequate return on investment or improvement from their ACO initiative. To Robertson, this just highlights the importance of population health analytics in achieving ACO success. Had Adventist focused on no-risk or low-risk populations, it might not have achieved nearly the cost savings it had with its own proof of concept by targeting the high-risk pool of its self-insured employee-based covered lives, he says.

Now Adventist is forming an ACO for Medicare populations based on this same set of tools to track high-risk members of those populations. As time goes on, commercial-payer populations are also in Adventist’s sights. “We have a couple of pilots, like an apartment building that has a very large population of higher-risk individuals that we’re providing those types of services to, and it’s interesting to see when you focus on it what you achieve in terms of reduced consumption of healthcare services and increased health status,” Robertson says.

 

Leading the way to better patient care

At Virtua Health, population health analytics from Alere Analytics is being implemented to determine the highest-risk patients from a cohort of 12,000 attributed Medicare lives, says James Gamble, MD, chief medical information officer of the four-hospital, 885-staffed-bed integrated delivery network headquartered in Marlton, N.J.

Virtua became an ACO on January 1 and is preparing to add another 14,000 covered lives with a commercial insurer, says Alfred Campanella, Virtua’s executive vice president of strategic business growth and analytics.

“There are lots of different scenarios where action is needed to prevent an admission or to prevent a condition from getting worse,” Campanella says. Virtua is working with Alere to publish its alert lists via a Microsoft Dynamics customer relationship management platform. “That allows care nurses to take advantage of our Microsoft products like email and word processing,” he adds.

Virtua uses RNs to provide close case management of the high-risk population. Meanwhile, 80 Virtua-employed primary care doctors are kept updated via the workflow into the system’s electronic health record software. “That way that doctor doesn’t have to leave their EMR or jump around to see where things are going,” Campanella says.

“Our initial focus,” Gamble explains, “will be on these high-risk patients, so as we see it, these case managers’ day-to-day job will be: They’ll have a patient load, they will have care plans, they will have activities assigned to them for these patients.”

But the physician does not need to be the primary manager.

“As long as patients are following care plans, which are developed and approved by the providers, then the nurses will be managing them,” Gamble says. “Their communication will be more as updates. When an alert arises that the patient is at risk or in trouble, then obviously the nurse would directly communicate with the physician to try to intervene at any early stage before the patient’s health deteriorates or the patient ends up in the emergency room of the hospital.”

“What we’re seeing now is a more intense focus to try to fix those gaps in care and to identify patients who are at high risk for hospitalization or readmission or who need special attention,” Campanella says. “Technology gives you a greater magnifying glass in many respects for seeing the barriers to care and for creating efficiencies in care delivery. While all the analysis is not complete, early results for clinical and financial savings are promising.”

Support from top leadership has been crucial to Virtua’s transformational pivot toward analytics. “This whole idea of care coordination was approved at the board of trustees level,” Campanella says. “We’ve had tremendous support from our CEO, Richard Miller. One of our senior vice presidents, Stephen Kolesk, MD, doubles as the president of this subsidiary that is the ACO. He has a title of senior vice president for clinical integration, so it’s very tightly integrated with the physicians.”

Technical design of the Virtua analytics solution is close to completion. Parts of it will deploy before the end of 2013, and other parts will roll out in the first quarter of 2014, says Campanella. Also part of the project are an existing health information exchange and a new patient portal built on top of the HIE, he adds.

“Innovation does require some experimentation and risk,” Campanella says. “The ones who are leaders are taking on some risk and putting some investment in without fully understanding the full picture, but that’s what makes them leaders.

“It’s now the right way to care for patients, to have this high touch, high visibility into all the different domains of their care and the handoffs between those domains, and so even if the ACO concept from a regulatory standpoint goes away, it’s still the right way to care for patients,”
Campanella says.

Outside the hospital walls

Organizations beyond postacute hospitals are also engaging healthcare in a variety of ways that have broad implications for how analytics will be deployed in healthcare across the United States.

Brentwood, Tenn.–based Brookdale Senior Living owns and operates about 650 senior living communities in 36 states. In 2012, Brookdale, through a partnership with the University of North Texas Health Science Center and Florida Atlantic University, received $2.8 million of a $7.3 million Centers for Medicare & Medicaid Services Health Innovations Challenge grant for population health management. The program expects to save more than $9 million over a three-year period.

Initially, Brookdale is focusing on population health at 27 communities in Texas and Florida, but by the end of the three-year grant, it will involve 67 communities, says Kevin O’Neil, MD, chief medical officer of the organization.

The CMS grant sets a goal for Brookdale of reducing avoidable hospital readmissions by 11%, O’Neil says. “We know we’re going to be focusing on certain quality metrics in addition to readmissions,” he says. “We’ll focus on dehydration rates, as well as new incidents of pressure ulcers, some of the major problem areas in geriatric care, and then, based on the data that we receive from the analytics tool, it’ll help guide our quality improvement teams in terms of the type of improvement efforts that need to be initiated.”

 

A variety of tools exist to help stratify risk. Some tools place members of a population on a scatter plot to make the identification of outliers easier. Other tools organize a population into patient registries to track various diseases and treatments. Still other tools use input gathered from patient surveys. A recent study, however, reported that many of those tools had not performed very well.

At St. David’s Health System in Austin, which is working with Brookdale on the challenge grant, 60% of readmissions recently were measured as coming from low-risk groups. “To me [this] means either that people hadn’t been stratified properly, or that they were being sent home when they probably did need some kind of service or follow-up,” O’Neil says.

The biggest hurdle in O’Neil’s experience with population health analytics has been engaging with the hospital C-suite to craft the business associate agreements necessary to manage populations. “Once we’ve developed a relationship with one entity and had success, it’s much easier to engage other entities within that system.”

In dealing with the two universities, O’Neil says, “We had to resolve some issues related to intellectual property to incorporate INTERACT into electronic information systems,” he says. INTERACT is an acronym for Interventions to Reduce Acute Care Transfers, a free quality improvement program for which FAU holds the trademark and copyright. “This has been resolved through a licensing agreement—Loopback [a Dallas-based analytics platform vendor] also has a licensing agreement with FAU to bake INTERACT tools into software programs.”

Both Brookdale and its hospital partners are using a common population health analysis dashboard and software provided by Loopback Analytics. “As a geriatrician, this is the most exciting time in my career, because I’ve always felt that fee-for-service medicine was the bane of good geriatric care because it rewarded volume rather than quality,” O’Neil says. “Having that near-real-time data is really going to be extremely helpful to us.”

Analytics and meaningful use

Analytics tools produce the patient registries that identify gaps in care, not just to meet ACO objectives, but also to meet the requirements of meaningful use stage 2, which takes effect in 2014, says Gregory Spencer, MD, a practicing general internist and chief medical officer at Crystal Run Healthcare, a multispecialty practice with more than 300 physicians based in Middletown, N.Y.

“There are frequently registry functions within EHRs, but the EHR is set up at the patient level,” Spencer says. “It’s not optimized for reporting groups of patients, so to kind of get that rollup, you have to have another layer on top of that to gather it up.”

Thus, some sort of aggregator function is needed. “Usually that is not something that many EMRs do well,” Spencer says. “Registries are mostly condition- or disease-specific lists of patients who satisfy a certain criteria: diabetics, patients with vascular disease, kids with asthma. Care gaps look at all patients who have not had a certain recommended service. There is overlap with the registries, since a list of patients due for their colonoscopy is a kind of registry that needs to be ‘worked’ to get those patients compliant.”

Like numerous other healthcare organizations, Crystal Run’s first foray into population health analytics employed Microsoft Excel spreadsheets.

“The basics can be done with available tools,” Spencer says. “People shouldn’t wait for the killer app that’s out there that’s fancy and has a slick user interface. You can really do a lot with what you have, probably immediately.”

Since 1999, however, Crystal Run has incrementally left Excel behind and built population health analytics reporting tools on top of its NextGen electronic health record software, Spencer says. Crystal Run also adopted the Crimson Population Risk Management service from the Advisory Board Company, which incorporates technology from Milliman Inc. on the back end, he says.

Like other providers, Crystal Run saw the shift coming from fee-for-service to accountable care and took early opportunities to get its hands on claims data and learn how to work with it, Spencer says.

Other resources offering insight to accountable care analytics were the Group Practice Improvement Network and the American Medical Group Association, where Spencer has been able to network with peers who have been pursuing population health analytics longer than Crystal Run has.

The Crystal Run practice, formed in 1996, grew out of a single-specialty oncology practice and today has 1,700 employees. It is designated by the NCQA as a level 3 patient-centered medical home, and in 2012, Crystal Run became one of the first 27 Medicare Shared Savings ACOs.

Analytics have revealed “a lot of surprises at who you think has been getting most of their care from you,” he says. Snowbirds—typically someone from the Northeast, Midwest, or Pacific Northwest who spends substantial time in warmer states during the winter—are receiving significant amounts of care that had been outside of Crystal Run’s knowledge.

But with Medicare claims data examined through its analytics services, Crystal Run has had its eyes opened to previously unobserved cost centers. For instance, the No. 1 biller of pathology services for a 10,000-patient Crystal Run cohort was discovered to be a local dermatologist.

“What it’s all about is improving quality and eliminating waste,” Spencer says. “That waste is [in] tests that aren’t really required [and even some] visits that are [being required]. It’s your habit and custom to see people back at a certain frequency, but when you really start thinking about it, do you really need to see somebody back every three months who has stable blood pressure and has been rock solid? Well, probably not. And so you start doing things like that, and it adds up incrementally.”

 

Crystal Run is able to incorporate patients’ outside visits to providers, Spencer says, “but it’s not easy. We require source documentation to satisfy measures. For example, we scan outside mammogram results into a directory that we can then report against. We don’t take people’s word for dates. We need to have the document.”

Getting the initial claims data from CMS took three months, and then it takes another three or six months’ worth of that data for it to become actionable, Spencer says.

Claims data on any one patient is also plagued by incurred but not reported claims. Until IBNR claims get processed through Medicare or other payers, a true picture of a patient’s treatment is incomplete.

In light of this, it’s important for all concerned to have realistic expectations of what population health analytics can achieve and when, Spencer says.

“Cost is a practical concern we all face in our day-to-day lives,” he says. “You get more for more money, but as in all things, you have to be prudent. I don’t know how you will be able to do business in the very near future without using some form of analytics. How will your quality measures be good enough to meet the ‘gates’ required for contracts? How will you know where you are or if you can grow and how? It has cost a lot of money—money that’s been spent over a long period of time. The cost is into the low millions.

“That said,” Spencer adds, “we are able to take advantage of newer payment models that reward us not just for healthcare, but outcomes. We can potentially get paid for not doing anything—the PMPM that can be negotiated when you show you are doing a good job managing a population of patients.”

Analytics in the ambulatory practice

Gastroenterologist Tom M. Deas Jr., MD, practices as part of North Texas Specialty Physicians based in Fort Worth, an independent physician association comprising nearly 600 family and specialty doctors. NTSP has its own health plan and has been managing Medicare patients at risk for several years.

NTSP provided initial funding for a population health analytics firm, Sandlot Solutions, which has now been spun out as a separate company, although NTSP remains a part owner and Deas also serves as Sandlot’s chief medical officer. NTSP uses Sandlot’s analytics software to manage 80,000 at-risk lives, Deas says.

“Without some of the information technology to identify those patients based on their illnesses, comorbid illnesses, their severity of illness, who their physicians are, where they’ve been going to get their care, and being able to manage the whole spectrum of the care, you’re at a serious disadvantage,” Deas says.

Sandlot’s technology combines claims and clinical data into a robust patient data warehouse that helps meet some of the quality measures required to be an ACO, says Deas. “With the ACO, no matter how much money you save, you don’t get a dime of it if you haven’t met all the quality measures, so if we fall short in that area, it’s economically not good and it’s not good for the patients.”

By default, all Pioneer ACOs received three years of Medicare claims data. Getting the data into the warehouse requires overcoming some well-known healthcare IT issues, such as reconciling that claims data with an enterprise master-patient index, eliminating duplicates, and general patient-matching issues, Deas notes.

Once that was done, NTSP could concentrate on using Sandlot’s analytics to spot and eliminate wasteful services, as such home visits for patients lacking a medical necessity for such visits, Deas says. Analytics-driven interventions can manage a few hundred overutilizers of services as outpatients, focusing care management on them, he adds.

After a year’s effort, NTSP has bent its cost curve through these efforts to the tune of $50 per member per month, Deas says. “Now we’re not completely there,” he cautions. “It’s an incremental process, because you’re not only doing management, but you’re changing behaviors also. You’re trying to get patients aligned with the primary care physician, trying to move them from one source of care that was maybe excessive utilization to another.”

Deas says measuring the ROI of analytics technology remains elusive.

“A lot of people think they just buy an analytics tool and a data warehouse and an HIE and it’ll sit there and solve their problems,” he says. “That is not the case. You have to have human folks using that tool to manage the care of patients, to lower the cost and improve the quality. It’s like me asking you how much more efficient are you with a smartphone than you were five years ago with whatever version of phone you had then. You can’t answer that question. All you know, it’s just one part of what’s happened in the past five years to make you more efficient.”

It no doubt helps that NTSP’s executive director, Karen van Wagner, has a PhD in statistics, giving the organization added expertise to quantify results as they emerge.

Analytics technology is just beginning to make its impact felt in population health management. Careful consideration of products, objectives, workflows, and business conditions will steer providers through potential pitfalls, but the effort is considerable and the challenge to healthcare leadership is ongoing.

“Among the things that made these changes successful is an IT infrastructure that supports population health management and care management,” Deas says. “We still have to throw a fair amount of resources—human resources—at it to make it work.”

Reprint HLR1113-2


This article appears in the November issue of HealthLeaders magazine.


Scott Mace is senior technology editor at HealthLeaders Media. 

Preventing medical error

  • diagnostic errors are the most preventable medical mistakes
  • Automation is part of the solution – sifting through medical records to look for potential bad calls, or to prompt doctors to follow up on red-flag test results.
  • Another component is devices and tests that help doctors identify diseases and conditions more accurately
  • online services that give doctors suggestions when they aren’t sure what they’re dealing with
  • changing medical culture is another approach

Source: http://online.wsj.com/news/articles/SB10001424052702304402104579151232421802264

The Biggest Mistake Doctors Make

Misdiagnoses are harmful and costly. But they’re often preventable

A patient with abdominal pain dies from a ruptured appendix after a doctor fails to do a complete physical exam. A biopsy comes back positive for prostate cancer, but no one follows up when the lab result gets misplaced. A child’s fever and rash are diagnosed as a viral illness, but they turn out to be a much more serious case of bacterial meningitis.

Such devastating errors lead to permanent damage or death for as many as 160,000 patients each year, according to researchers at Johns Hopkins University. Not only are diagnostic problems more common than other medical mistakes—and more likely to harm patients—but they’re also the leading cause of malpractice claims, accounting for 35% of nearly $39 billion in payouts in the U.S. from 1986 to 2010, measured in 2011 dollars, according to Johns Hopkins.

The good news is that diagnostic errors are more likely to be preventable than other medical mistakes. And now health-care providers are turning to a number of innovative strategies to fix the complex web of errors, biases and oversights that stymie the quest for the right diagnosis.

Part of the solution is automation—using computers to sift through medical records to look for potential bad calls, or to prompt doctors to follow up on red-flag test results. Another component is devices and tests that help doctors identify diseases and conditions more accurately, and online services that give doctors suggestions when they aren’t sure what they’re dealing with.

twisted_stethescope

Finally, there’s a push to change the very culture of medicine. Doctors are being trained not to latch onto one diagnosis and stick with it no matter what. Instead, they’re being taught to keep an open mind when confronted with conflicting evidence and opinion.

“Diagnostic error is probably the biggest patient-safety issue we face in health care, and it is finally getting on the radar of the patient quality and safety movement,” says Mark Graber, a longtime Veterans Administration physician and a fellow at the nonprofit research group RTI International.

Big Efforts Under Way

The effort will get a big boost under the new health-care law, which requires multiple providers to coordinate care—and help prevent key information like test results from slipping through the cracks and make sure that patients follow through with referrals to specialists.

There are other large-scale efforts in the works. The Institute of Medicine, a federal advisory body, has agreed to undertake a $1 million study of the impact of diagnostic errors on health care in the U.S.

In addition, the Society to Improve Diagnosis in Medicine, which Dr. Graber founded two years ago, is working with health-care accreditation groups and safety organizations to develop methods to identify and measure diagnostic errors, which often aren’t revealed unless there is a lawsuit. In addition, it’s developing a medical-school curriculum to help trainees improve diagnostic skills and assess their competency.

 

Robert Wachter, associate chairman of the department of medicine at the University of California, San Francisco, says defining and measuring diagnostic errors is an important step. “Right now, none of the incentives for improvement in health care are based on whether the doctor made the correct diagnosis,” Dr. Wachter says. But equally important, he adds, “we need to nurture bottom-up innovation.”

That’s already happening. Large health-care systems are mining their electronic records for missed signals. At the Southern California Permanente Medical Group, part of managed-care giant Kaiser Permanente, a “Safety Net” program periodically surveys its database of 3.6 million members to catch lab results and other data that might fall through the cracks.

In one of the first uses of the system, a case manager reviewed 8,076 patients with abnormal PSA test results for prostate cancer, and more than 2,200 patients had follow-up biopsies. From 2006 to 2009, 745 cancers were diagnosed among those patients—and Kaiser had no malpractice claims related to missed PSA tests.

The program is also being used to find patients with undiagnosed kidney disease, which is often found via an abnormal test result for creatinine, which should be repeated within 90 days. From 2007 to 2012, the system found 7,218 lab orders placed for patients with an abnormal test that had not been repeated. Of those, 3,465 were repeated within 90 days of a notice to patients that they needed a repeat test, and 1,768 showed abnormal results. The majority, 1,624, turned out to be new cases of the disease.

Michael Kanter, regional medical director of quality and clinical analysis, says the system enables clinicians to go back “as far as is feasible to find all of the errors that we can and fix them.”

Because the disease is slow moving, Dr. Kanter says, people with a five-year-old undiagnosed case may not have been harmed. Likewise, with many early prostate cancers, “in many of these cases it doesn’t mean harm would have reached the patient,” he says. “But we don’t want patients not to have the information they should have had through some kind of lapse in the system.”

Dealing With the Flood

Electronic records aren’t a panacea, of course, and can even lead to information overload. In a survey of Veterans Administration primary-care practitioners reported last March in JAMA Internal Medicine, more than two-thirds reported receiving more patient-care-related alerts than they could effectively manage—making it possible for them to miss abnormal test results.

Some researchers suggest the best solution isn’t to flood doctors with information but to provide a second set of eyes to find things they may have missed.

The focus now is preventing dangerous delays in follow-ups of abnormal test results. In a pilot program, researchers at the Houston VA developed “trigger” queries—a set of rules—to electronically identify medical records of patients with potential delays in prostate and colorectal cancer evaluation and diagnosis. Records included charts that had no documented follow-up for abnormal findings suspicious for cancer after a certain period, according to the research team’s leader, Hardeep Singh, chief of health policy and quality at Michael E. DeBakey VA Medical Center in Houston and an assistant professor of medicine at Baylor College of Medicine.

The queries were run on nearly 600,000 records of patients seen at one VA facility in 2009 and 2010. Dr. Singh says the use of triggers, which helped find abnormal PSA tests and positive fecal occult blood tests, could detect an estimated 1,048 instances of delayed or missed follow-up of abnormal findings annually and 47 high-grade cancers.

The VA has funded a randomized trial to test whether an automated surveillance system of triggers can improve timely diagnosis and follow-up for five common cancers.

“This program is like finding needles in a haystack, and we use information technology to make the haystack smaller and smaller so it’s easier to find the needles,” Dr. Singh says.

More health-care systems are also turning to electronic decision-support programs that help doctors rank possible diagnoses by likelihood based on symptoms and notes in the medical record. In a study of one such system, called Isabel, researchers led by Dr. Graber found that it provided the correct diagnosis 96% of the time when key clinical features from 50 challenging cases reported in the New England Journal of Medicine were entered into the system. The American Board of Internal Medicine is studying how Isabel could be linked to assessments of physician skill and knowledge.

Another system, DXplain, developed at Massachusetts General Hospital in Boston, was shown in a study last year to significantly improve diagnostic accuracy among first-year medical residents.

Edward Hoffer, associate clinical professor at Harvard and senior computer scientist at Mass General who leads the DXplain program, says the aim now is to have DXplain “push” diagnostic suggestions to physicians through an electronic-medical-records system rather than requiring doctors to initiate a query, which some are still reluctant to do. “We have to focus our attention on dealing with situations where doctors think they know what the diagnosis is, but they don’t,” Dr. Hoffer says.

Other Avenues

New devices also hold promise for confirming a diagnosis and avoiding unnecessary tests. A number of companies are rushing to provide aids such as portable diagnostic equipment and lab tests that can analyze tiny samples of blood and other bodily fluids quickly to detect disease.

Consider MelaFind, which came to market in the U.S. in 2011. The device allows dermatologists to noninvasively examine moles as deep as 2.5 millimeters beneath the surface to gauge the level of “disorganization,” an indicator of irregular growth patterns that are a sign of melanoma, among the deadliest cancers.

New York dermatologist Macrene Alexiades-Armenakas says she uses MelaFind to confirm that a mole is to be removed and prioritize the level of disorganization in multiple abnormal moles. In some cases, when another doctor or the patient has been concerned about a mole, MelaFind supported “clinical diagnosis of a benign mole, thereby sparing them a biopsy,” she says.

But such devices will never replace a thorough physical exam with a trained eye and careful follow-up, says Dr. Alexiades-Armenakas: “These diagnostic tools are aids to increase our accuracy and adjuncts to good physical diagnosis, not a substitute.”

Some efforts to cut down on errors take a different route altogether—and try to improve diagnoses by improving communication.

For instance, there’s a push to get patients more engaged in the diagnostic process, by encouraging them to speak up about their symptoms and ask the doctor, “What else could this be?” At Kaiser Permanente, a pilot program provides patients with a pamphlet that encourages them to think about and write down their symptoms and what concerns or fears they have, encouraging them to ask specific questions to be sure they understand their diagnosis and the next steps they must take.

Medical schools, meanwhile, are teaching doctors to be more receptive to patient input and avoid “anchoring,” the habit of focusing on one diagnosis and excluding other possible scenarios, and “premature closure,” not even considering the correct diagnosis as a possibility.

The Critical Thinking program at Dalhousie University in Halifax, Nova Scotia, established last year, aims to help trainees step back and examine how biases may affect their thinking. Developed by Pat Croskerry, a physician known for his research on the role of cognitive error in diagnosis, it uses a list of 50 different types of bias that may lead to diagnostic error.

The program is being integrated throughout four years of the medical school. Students study cases such as a psychiatric patient with shortness of breath who was assumed to be merely having an anxiety attack; doctors overlooked that she was a smoker on birth-control pills, a risk for the blood clot that later traveled to her lung and killed her.

“If we can teach physicians how to think more critically,” Dr. Croskerry says, “they would be more effective in delivering good care and arriving at the right diagnosis.”

Ms. Landro is an assistant managing editor for The Wall Street Journal and writes the paper’s Informed Patient column. She can be reached at laura.landro@wsj.com.

Chronic Disease Fear Factor Ageing Messaging

Governments won’t be able to afford you if you are over 70 and can’t work
You will need to be productive
The current health market can only extend your life, but not your productive life
The new health system will have to do both if we are to preserve our standard of living
Sure, people will need to die sometime, but it’s the when, how and why they die that needs to evolve
This health system aims to deliver on this
Australia is well positioned to lead the world on this
Excitement

How Doctors Die: Showing Others the Way

Source: http://www.nytimes.com/2013/11/20/your-money/how-doctors-die.html?from=homepage&_r=0

November 19, 2013  By DAN GORENSTEIN

BRAVE. You hear that word a lot when people are sick. It’s all about the fight, the survival instinct, the courage. But when Dr. Elizabeth D. McKinley’s family and friends talk about bravery, it is not so much about the way Dr. McKinley, a 53-year-old internist from Cleveland, battled breast cancer for 17 years. It is about the courage she has shown in doing something so few of us are able to do: stop fighting.

This spring, after Dr. McKinley’s cancer found its way into her liver and lungs and the tissue surrounding her brain, she was told she had two options.

“You can put chemotherapy directly into your brain, or total brain radiation,” she recalled recently from her home in suburban Cleveland. “I’m looking at these drugs head-on and either one would change me significantly. I didn’t want that.” She also did not want to endure the side effects of radiation.

What Dr. McKinley wanted was time with her husband, a radiologist, and their two college-age children, and another summer to soak her feet in the Atlantic Ocean. But most of all, she wanted “a little more time being me and not being somebody else.” So, she turned down more treatment and began hospice care, the point at which the medical fight to extend life gives way to creating the best quality of life for the time that is left.

Dr. Robert Gilkeson, Dr. McKinley’s husband, remembers his mother-in-law, Alice McKinley, being unable to comprehend her daughter’s decision. “ ‘Isn’t there some treatment we could do here?’ she pleaded with me,” he recalled. “I almost had to bite my tongue, so I didn’t say, ‘Do you have any idea how much disease your daughter has?’ ” Dr. McKinley and her husband were looking at her disease as doctors, who know the limits of medicine; her mother was looking at her daughter’s cancer as a mother, clinging to the promise of medicine as limitless.

When it comes to dying, doctors, of course, are ultimately no different from the rest of us. And their emotional and physical struggles are surely every bit as wrenching. But they have a clear advantage over many of us. They have seen death up close. They understand their choices, and they have access to the best that medicine has to offer.

“You have a lot of knowledge, a lot of awareness of what’s likely to come,” said Dr. J. Andrew Billings from his home in Cambridge, Mass.

Dr. Billings, 68 and semi-retired, is an expert in palliative care, which can include managing pain, emotional support and end-of-life planning. He is also a cancer patient with a life-threatening form of lymphoma. Dr. Billings said that knowledge of what may be ahead can give doctors more control over their quality of life before they die — control that eludes many of us.

Research shows that most Americans do not die well, which is to say they do not die the way they say they want to — at home, surrounded by the people who love them.According to data from Medicare, only a third of patients die this way. More than 50 percent spend their final days in hospitals, often in intensive care units, tethered to machines and feeding tubes, or in nursing homes.

There is no statistical proof that doctors enjoy a better quality of life before death than the rest of us. But research indicates they are better planners. An often-cited study, published in 2003, of physicians who had been medical students at Johns Hopkins University found that they were more likely than the general public to have created advance directives, or living wills, which lay out specific plans for care if a patient is unable to make decisions. Of the 765 doctors studied, 64 percent had advance directives, compared with about 47 percent for American adults over 40.

Patients and families often pay a high price for difficult and unscripted deaths, psychologically and economically. The Dartmouth Atlas Project, which gathers and analyzes health care data, found that 17 percent of Medicare’s $550 billion annual budget is spent on patients’ last six months of life.

“We haven’t bent the cost curve on end-of-life care,” said Dr. David C. Goodman, a senior researcher for the project.

The amount spent in the intensive care unit is climbing. Between 2007 and 2010, Medicare spending on patients in the last two years of life jumped 13 percent, to nearly $70,000 per patient.

The evidence is clear, Dr. Goodman said, that things could change if doctors “respect patient preferences and provide fair information about their prognosis and treatment choices.”

Sometimes that can be easier said than done, even for doctors. One day last month, as he sat through the first of several hours of chemotherapy at the Dana-Farber Cancer Institute in Boston, Dr. Billings said he had looked at statistical survival curves for his form of lymphoma.

“There are some dots that are very, very soon, and there are some dots that are a long ways off, and I hope I’m one of those distant dots,” he said.

Dr. Billings knows how important it is to have that information. As a palliative care doctor, he has spent a lifetime helping people plan their final days. Also, he is married to a prominent palliative care doctor, Dr. Susan D. Block.

“As a doctor you know how to ask for things,” he said. But as a patient, Dr. Billings said he had learned how difficult it can be to push for all the information needed. “It’s hard to ask those questions,” he said. “It’s hard to get answers.”

There is a reason for that. In his book “Death Foretold,” Nicholas A. Christakis, a Yale sociologist, writes that few physicians even offer patients a prognosis, and when they do, they do not do a great job. Predictions, he argues, are often overly optimistic, with doctors being accurate just 20 percent of the time.

But without some basic understanding of the road ahead, Dr. Anthony L. Back, a University of Washington professor and palliative care specialist, said even sophisticated patients could end up where they least want to be: the I.C.U. “They haven’t realized the implications of saying: ‘Yeah, I’ll have that one more treatment. Yeah, I’ll have that chemotherapy,’ ” Dr. Back said.

In Raleigh, N.C., Dr. Kenneth D. Zeitler has practiced oncology for 30 years. The son of a doctor and the father of two doctors, he learned 18 years ago that he had a brain tumor, which was removed. When the tumor recurred in 2004, he took the conservative route and decided against an operation — the risk of paralysis was too great. Dr. Zeitler, his wife and their two children mapped out a clear medical path, or so they thought.

Then in June, he woke up with the left half of his body paralyzed, after a low-risk biopsy caused a hemorrhage in his brain. “As a physician myself, when treating patients, I listened to this inner voice,” he said, but now he was mad at himself. “Instead of just saying ‘No, I won’t do this biopsy,’ I didn’t follow my instincts.”

Dr. Zeitler realized after his biopsy that saying no can mean more than turning down a procedure. It can mean dealing with something much harder: his family’s expectations that he will do whatever it takes to live and remain with them.

As transparent as Dr. Zeitler was with his family about his clinical care, he had walled off his deepest fears about losing pleasure in his daily life. He has since regained most physical functions and says he has had another chance to talk to his family. “As much as they’ll cry about me at every bar mitzvah and every wedding, I don’t want to be there if I’m just completely miserable psychologically and physically,” he said. “I’ve seen that. I don’t need that.”

Dr. Joan Teno, an internist and a professor of medicine at Brown University, says that often, even families like the Zeitlers, avoid the difficult conversations they need to have together and with doctors about the emotional side of dying.

“We pay for another day in I.C.U.,” she said. “But we don’t pay for people to understand what their goals and values are. We don’t pay doctors to help patients think about their goals and values and then develop a plan.”

But the end-of-life choices Americans make are slowly shifting. Medicare figures show that fewer people are dying in the hospital — nearly a 10 percent dip in the last decade — and that there has been a modest increase in hospice care. At the same time, palliative care is being embraced on a broad scale, with most large hospitals offering services.

The Affordable Care Act could accelerate those trends. Ezekiel Emanuel, the former White House health policy adviser, has said he believes that new penalties for hospital readmissions under the law could improve end-of-life care, making it more likely “we make the patient’s passage much more comfortable and out of the hospital.”

Culturally there is movement too. For example, deathoverdinner.org, a website to help people hold end-of-life discussions, was started in August. The project’s founder, Michael Hebb, said more than 1,000 dinner parties had been held, including some at nursing homes.

The front door at Dr. McKinley‘s big house was wide open recently. Friends and caregivers came and went. Her hospice bed sat in the living room. Since she stopped treatment, she was spending her time writing, being with her family, gazing at her plants. Dr. McKinley knew she was going to die, and she knew how she wanted it to go.

“It’s not a decision I would change,” Dr. McKinley said. “If you asked me 700 times I wouldn’t change it, because it is the right one for me.”

Dr. McKinley died Nov. 9, at home, where she wanted to be.

IBM Watson in Healthcare

What makes you sick?

Chronic health conditions impact the lives of billions of people around the world each year.

Chronic illness accounts for approximately 60% of deaths globally each year.

World population: 6.8 billion. 2 billion people worldwide struggle with chronic illnesses like cancer, heart disease and diabetes.

Early and accurate diagnosis has the potential to improve patient success rates, but it can be difficult to establish.

Medical knowledge is growing more quickly than doctors can keep up with.

In the U.S. alone, up to 15% of medical diagnoses are inaccurate or incomplete.

Digitized medicine in North America alone will grow 400% by 2015 —reaching a total of 14,000 terabytes of data, or 7,500 times the data in all U.S. libraries combined.

To give physicians better insight to help improve patient outcomes, WellPoint is pioneering the use of DeepQA technology—otherwise known as IBM Watson—in healthcare.

Imagine a patient describing her symptoms to a physician who has immediate access to Watson through his laptop.

  1. Based on the symptoms described, Watson provides probabilities for five possible diagnoses.
  2. Watson then considers explicitly absent symptoms to reassess these probabilities.
  3. Correlating the symptoms with family and patient histories, Watson is able to refine the hypotheses further.
  4. The process is repeated with a focus on the patient’s current medications.
  5. Final probabilities are determined, and the physician moves on to testing.

Every patient represents a wide spectrum of variables.

Symptoms

  • Fever
  • Dizziness
  • Abdominal pain
  • Back pain
  • Cough

Family history

  • Diabetes
  • Breast cancer
  • Colorectal cancer
  • Coagulation disorders
  • Grave’s Disease

Patient history

  • Hypertension
  • Hyperlipidemia
  • Hypothyroidism
  • Frequent urinary tract infection
  • Smoking

Clinical findings

  • Blood pressure
  • Heart rate
  • Restoration rate
  • Temperature
  • Pain score

Medications

  • Pravastatin
  • – Lasix
  • Aspirin
  • Chemotherapy
  • Antiemetics

Watson: An expert diagnostic system

This groundbreaking system can pore though the equivalent of 200 million pages of medical data and formulate a response in less than 3 seconds, enabling healthcare professionals to make more informed decisions more quickly than ever before.

Natural language processing – Breaks down the communication barrier between humans and computers.

Hypothesis generation – Offers various probabilities rather than attempting a single “right” answer.

Adaptation and learning – Builds knowledge iteratively over time, in much the same way that humans learn.

Correlated patient information

Possible conditions

  • Renal failure
  • UTI
  • Influenza
  • Esophagitis
  • Diabetes
  • Stage 1 lung cancer

WellPoint is using Watson to help physicians become better at what they do — delivering improved care more quickly and confidently than ever before. The potential of Watson doesn’t end there. The same capabilities hold enormous promise for financial services, transportation and more.